What are you looking for?
Search the whole site or browse by topic
CPAM
Family stories
Aaliyah was diagnosed with a large high-risk CPAM at the 20 week scan. After steroids didn’t slow down the CPAM’s growth, she developed hydrops and a shunt procedure was performed to drain the mass. She was born symptomatic, had surgery at 2 months old and is now a happy and healthy 20 month old! Her mom shares the family’s story.
Cillian’s family navigated his prenatal CCAM diagnosis (now called CPAM) alongside his father’s battle with cancer. Juggling a high-risk pregnancy, chemotherapy appointments, and early surgery at just two weeks old, the family made it through and Cillian is now a happy, healthy, active boy. Cillian’s mother shares their story of love, hope, and resilience.
At 36 weeks, Lexie was diagnosed with a large macrocystic CPAM that had been missed earlier in pregnancy. After struggling to get clear answers locally, her parents transferred care to the Children’s Hospital of Philadelphia (CHOP), where an experienced surgical team delivered and operated on Lexie immediately after birth. Despite the severity of her lung lesion, she recovered quickly and today—at 4.5 years old—is thriving and completely healthy.
After two miscarriages, a mother's third pregnancy brought both hope and fear when her daughter was diagnosed with CCAM (now called CPAM) at 20 weeks. Born early at 35 weeks, Kayla was asymptomatic and underwent a successful surgery at three months old. Now a happy healthy eleven year old, Kayla is thriving with no long-term effects.
During her first pregnancy, Lena’s mom learned at 20 weeks that her baby had a large, high-risk CPAM. After two courses of prenatal steroids and a CVR that peaked at 2.6, the lesion’s growth stalled — and Lena was born healthy and asymptomatic at 39 weeks.
BPS
Family stories
A rocky pregnancy with an extralobar BPS (bronchopulmonary sequestration) and an unexpected stay in the NICU
Hybrid lesions
Family stories
MM was diagnosed prenatally with a small lung mass. She was born asymptomatic and later a CT scan confirmed a hybrid lesion with a feeder vessel. After a second opinion at CHOP, she had a successful resection at 3.5 years old, recovered well, and her 6-month post-op X-ray looked great with no further follow-up needed.
Terrified after a prior scan scare, Evan’s parents heard “we need the doctor” and learned their baby had a lung malformation with a large feeder vessel. Although prenatal imaging later looked clear, a CT at two months revealed major blood diversion. Surgery at 2.5 months was hard, but Evan recovered and is thriving today.
Diagnosed in utero with a hybrid CPAM/BPS lesion, baby JJ faced a complicated start to life. His mother shares their powerful journey through uncertainty, a NICU stay, successful surgery, and the gratitude and wonder she feels watching her little boy thrive today.
Bronchial Atresia
Family stories
At their 20-week anatomy scan, Macie’s parents learned that their baby girl had a rare lung lesion. After close monitoring in Alabama, they traveled to the Children’s Hospital of Philadelphia (CHOP) when Macie was one month old, where she underwent a successful right lower lobectomy. The mass was diagnosed as bronchial atresia. Today, at three years old, Macie is healthy, thriving, and full of life.