Outside Resources

We have curated a list of resources that may be useful. Please let us know if you think something should be added to the list.

🚨 Crisis resources

U.S.: Call or text 988 (Suicide & Crisis Lifeline)
U.K.: Call 116 123 (Samaritans)
Canada: Call or text 988 (Suicide Crisis Helpline)
Australia: Call 13 11 14 (Lifeline)
Elsewhere: Find hotlines worldwide at findahelpline.com

If you are experiencing a medical emergency, call your local emergency number right away.

Parents of CCAM/CPAM Babies (Facebook group)

This private Facebook group has been running for over 10 years and has helped thousands of parents connect with each other, ask questions, and share their experiences.

The Italian CCAM Association/Bambini con la CCAM

Organization based in Italy helping families through congenital lung malformation diagnoses with peer support, education and financial assistance. Support is available in English and Italian. WhatsApp +393291864884 | email info@bambiniconlaccam.it

Pyjama Fairies

UK charity that makes pyjamas and surgical gowns specially designed for babies and children up to age 16 having surgery or any other associated medical test. Each garment is made in colourful, age-appropriate fabric and is designed to minimise discomfort when medical intervention is necessary.

Fetal Health Foundation (CPAM page)

Resources, research, and support for families facing fetal conditions, including lung malformations