Our Story
The Congenital Lung Malformation Society began as CPAM Parents in late 2025; an idea sparked by the friendship between four moms in California who found strength and hope together while navigating their babies’ CPAM, BPS and CBA diagnoses.
We found there was a real lack of clear, accurate, up-to-date information that was written for parents like us who were learning about these conditions for the first time, as well as a need for greater connection and support for families going through these complex and difficult medical journeys.
We didn’t know each other before our babies’ diagnoses, but being able to connect and share with others who understood this experience made such a big difference to our own emotional wellbeing as well as to how we navigated our children’s care.
So we decided to create what we wished had existed.
The CLM Society was designed from the ground up to serve two needs at once.
The first is information: honest, accurate, content that reflects the current state of clinical knowledge and speaks directly to what patients and families are actually asking.
The second is community: a space where families or individuals at any stage of a lung malformation journey can connect with each other, share experiences, and know they are not alone.
From the beginning, we have been committed to doing this properly. We have built relationships with leading clinicians and researchers and developed a rigorous approach to the content we publish, staying grounded in what families actually need.
What started among four moms in California now supports families around the world every week.
We believe that every family or individual who receives a lung malformation diagnosis deserves access to high-quality information and real support—regardless of where they live, what hospital they're at, or when in the journey they find us.
Welcome.
Emily Lake, PhD
Founder and Chief Executive