Support over text
Our text support service is here to help anyone affected by a congenital lung malformation — from prenatal diagnosis through to adulthood. Currently only available in US and Canada.
Text us: +1 (760) 650-2726
CLM Society text support service
Our text support service is here to help anyone affected by a congenital lung malformation — whether you have just received a prenatal diagnosis, are the parent of an older child, or you have found out you have a CLM yourself.
Our trained peer support volunteers are here to listen to your questions and concerns and they can help you find the information you need. We understand that receiving a congenital lung malformation diagnosis can be incredibly overwhelming and stressful. Whether you're a parent, grandparent, caregiver, relative, friend, or adult patient, please don't hesitate to reach out.
What happens when I text?
You can text us with a question, a longer message, or just to request a text back. One of our volunteers will reply as soon as possible, normally within 24 hours.
Who will I text with?
Your first message will go to the Parent Connections Program team. This is our support service for anyone affected by a congenital lung malformation. We will then connect you with the best volunteer for your situation, for example someone who lives in the same country, someone who has experience at the same hospital, or with a similar diagnosis. Our volunteers can also help point you towards other resources.
What are some things I can ask?
You can contact us with any question or concern about anything related to a congenital lung malformation. No question is too small or too big. Some people just have one quick thing they want answered or clarified, some want a longer consult or conversation, while others have struck up longer term connections with a volunteer who has checked in and offered support through pregnancy, birth, surgery and recovery.
Do you offer medical advice?
No. We are parent volunteers who have a lot of experience navigating CLMs but we are not doctors or clinicians. We can help you make sense of your diagnosis, we can offer practical and emotional support, walk you through what to expect, and help you engage with your baby’s care team, but we do not offer medical advice.