Symptomatic at birth
Articles, resources, and guides on what to expect if your child is born symptomatic, meaning they need help to breathe.
Symptomatic at birth community stories
Aaliyah was diagnosed with a large high-risk CPAM at the 20 week scan. After steroids didn’t slow down the CPAM’s growth, she developed hydrops and a shunt procedure was performed to drain the mass. She was born symptomatic, had surgery at 2 months old and is now a happy and healthy 20 month old! Her mom shares the family’s story.
At 36 weeks, Lexie was diagnosed with a large macrocystic CPAM that had been missed earlier in pregnancy. After struggling to get clear answers locally, her parents transferred care to the Children’s Hospital of Philadelphia (CHOP), where an experienced surgical team delivered and operated on Lexie immediately after birth. Despite the severity of her lung lesion, she recovered quickly and today—at 4.5 years old—is thriving and completely healthy.
Diagnosed in utero with a hybrid CPAM/BPS lesion, baby JJ faced a complicated start to life. His mother shares their powerful journey through uncertainty, a NICU stay, successful surgery, and the gratitude and wonder she feels watching her little boy thrive today.
A rocky pregnancy with an extralobar BPS (bronchopulmonary sequestration) and an unexpected stay in the NICU